1 in 8 women will be diagnosed with breast cancer during her lifetime. Since March 2010 I am "1 in 8".
Wednesday, December 29, 2010
Sometimes.
Sunday, December 19, 2010
Let me re-phrase this!
Friday, December 17, 2010
My new "friend"
Wednesday, December 15, 2010
Disappointment
Saturday, December 11, 2010
Well, that's that!
Wednesday, December 8, 2010
To keep the port, or not to keep it???
Tuesday, December 7, 2010
Can you believe it: I AM DONE!!!!
The very last one!
Monday, December 6, 2010
Got it sorted out...now let's find a new reason for worries!

Saturday, December 4, 2010
Gaaawwwhhh...not a day without a hassle!
Wednesday, December 1, 2010
Let's be honest.

Saturday, November 27, 2010
I am a changed person.
Wednesday, November 24, 2010
Thanksgiving, thankfulness....

Sunday, November 21, 2010
Forgiving vs. saying "I am sorry", giving vs. taking
Monday, November 15, 2010
Conformity

Friday, November 12, 2010
Positivity

Wednesday, November 10, 2010
Dull
Sunday, November 7, 2010
Things I get tired of hearing....
Saturday, November 6, 2010
About being sick and being tired.
Wednesday, November 3, 2010
"Pink Fatigue"
In short the answer is "Yes, mostly yes at least"! Let me explain...
There is the emotional issue:
1. I do wear a pink bracelet because it makes a statement. It helped me feel a bit more secure when I was hairless, because I hoped that those staring would see it and feel stupid. I am saying "I AM A SURVIVOR!" when I wear it, and my family members that wear it, say "we are on her side".
2. Those people that buy pink junk and feel nice and cozy at night because they "did something" tend to be the same people that turn their head at the sight of a hairless girl and "whisper" to their friend "look at her". There is a lot I could say about those people, in the end I hope they never have to experience the pain comments like that can cause!
3. Pink IS the WRONG color. Pink is a very "cute" color. Let me tell you there is nothing CUTE or SEXY about breast cancer. It is HORRIBLE, PAINFUL, UGLY! Going through treatments is not cute either. Nor is recovery. Also, pink is a "girly" color. Men are affected by breast cancer, too. Now not as often as women, sure. But that makes it that much harder for men that are affected, I think?! Some suggest a barb wire ribbon to represent cancer. Barb wire because it is a tough, painful, difficult thing. I think green could be a good color, green is the color of hope-something we all need-, as well as, the color of MONEY!
4. There are many women out there, that feel like "celebrating" is certainly the wrong term. We are suffering. We are tired. We are sick. We are mourning.
In the end it seems, life is always about money, so is this issue:
5. Let's think this through. Do you think a pink tote, flag, ribbon, shoe, scooter...(fill in any of the "pink" products) makes a difference in finding a cure?! Really? I don't think so. It's marketing. A way to make the customer buy the company's junk, just because "it has the pink ribbon" on it. Well, look into it. Not everything that is pink helps "finding a cure" or "supports survivors". I am serious, companies all over the world use pink to up sales...Yes, there are several organizations and foundations in the cancer research field that are worth supporting, but be picky!
6. It's lack of proper treatment and too late detection that causes people to die of breast cancer. I was lucky, I did my self-exam and pushed my Dr. to investigate the matter. There are too many women that neglect their self-exam, or may not even know what to look for when doing it. There are too many women that cannot afford a mammogra, don't even talk about treatment. Let's push for more research funds, for more treatment options, for better health care, for a health system that allows anybody to get the treatment they need to survive without financially ruining themselves. I am fortunate. I live in a country were I am protected. I still have my job. My treatment is almost entirely paid for by the insurance. I even get paid most of my salary. Imagine the same scenario in the US were I worked as an hourly for one of the bigger companies -that's right, M. and I would be financially ruined, that's a sure thing. Doing your part in changing that is worth a million more than wearing pink shoes.
7. Finally, look at WHO is supporting the pink campaign. Let's take Estee Lauder as an example, they have a big campaign called "the pledge" or something. Well, their products are filled, I mean jam packed, with known carcinogens...Yes, those creams and lotions "may" cause cancer. It's the same as when Philip Morris has little "how to quit smoking" pamphlets in their smokes packs. STUPID! MESSED UP!
In the end, my friends, it takes more than buying stuff, talking about being a supporter, or posting on facebook what color bra you are wearing...
You are no supporter of breast cancer awareness because you buy a pink ribbon.
You are no environmentalist because you donate money to Greenpeace.
You are no Christian because you wear a cross.
You are no Buddhist because you like what the Dalai Lama says.
You are no humanitarian because you donate your old stuff to the Salvation Army.
You are not a punk because you have green hair.
Yes, you are busy! I know, we all are! But if you want to stand for something than, in my opinion, you should a) know what it is you stand for b) own it and not just say "I am__"
I know-that's a lot!
If you are more interested to find out more about this, look up:
http://www.stopbreastcancer.org/ --> though keep in mind, that they too are competing for funds!
And if you want to support a breast cancer survivor you can do more than buying pink stuff-call, just to talk. Let her/him cry. Let her/him complain without telling them that life isn't that bad..I could go on and on with good advice, but being a friend is ultimately the right thing to do!
Do you have an opinion on the topic?
Lots of love!
~H.
PS: This is just my opinion...
Tuesday, November 2, 2010
Race for the Cure!
Thursday, October 28, 2010
Survivor and remission.
I have seen myself as a survivor the entire time. Giving up was no option. There was no debate. So I am a survivor right now.
However, remission begins on the first day after my last treatment. So not yet. That will be the day that I will mark as my "remission day".
Any thoughts?
~H
Wednesday, October 27, 2010
It is just radiation...

Friday, October 15, 2010
Friends!
I am not angry at them, and I am not bitter. No! I am sad. Actually I don't know how many times M. has had to hear me cry about it. I have never been somebody to make friends easily. Aquaintances yes, friends no. For me to call somebody a friend, I have to trust; trust that they will be there if I really need them. Well these particular people have not even been able to call me once or send a text message. Nothing. I am sorry, if your life is so busy. And I am sad to lose another friend!
Friday, September 10, 2010
No more hospitals! Please....

Saturday, September 4, 2010
Surgery
I went with the lumpectomy.
All went well.
Had to stay 5 days.
Got out today, am tired, sore, crushed....my spirits are low, very low.
I met a few women who really touched me.
R. with cervical cancer. So scared. Found out she will need chemo. Terrified. I told her that she will be fine.
I. breast cancer. Like me she wanted a mastectomy but Docs convinced her of lumpectomy. They didn't get it all the first round. She had to stay and get another surgery, this time mastectomy.
I wish I could help. I wish I could make these women healthy, or at least feel better. I am angry. I am disappointed and cannot even say why.
This time I did not want anybody-aside from family-to visit. I get irritated with the looks, the "ohhh you poor thing" looks. I am not poor. I am not little. It is a horribly ugly thing, but not the end....which is why I don't want to be treated this way.
Dr. S. the surgeon is happy with the wound, I think it is ugly and I don't feel a thing on my right side. What a prospect!
Friday, September 3, 2010
"I know you will make it"

Sunday, August 15, 2010
Cancer diet...
There are so so so many books out there, claiming to know "the cancer diet"! Ok, neither the US cancer foundation, FDA, German Cancer Research Center (DKFZ), or the German Cancer Information Center (DKID) say that there is a certain diet that will prevent you from having cancer or will help you cure your cancer! It's, again, MARKETING. I know a thing or two about marketing. It's about money! Yes, there are foods that are better than others, but it comes down to a healthy lifestyle, though even that cannot preven you from having cancer.
General suggestions are:
- Minimize chemical foods
- Know what's in the stuff you eat
- Eat less meat
- Eat more veggies and fruit
- The fats you eat should be healthy fats
- Minimize consumption of refined foods
- use natural sweetener, like honey or agave sirup
- Drink more water
- Quit smoking
- Drink less or no alcohol
- Excercise
- Go outside
Don't spend money on books that claim to be able to prevent you having cancer. It's bull. Instead spend some time and learn what "a healthy lifestyle" REALLY means.
~H.
Wednesday, August 4, 2010
Monday, August 2, 2010
Chemomonster

Lumpectomy or Mastectomy
I am not sure.
I am scared.
I understand that I do NOT have the genetical mutation and that a mastectomy on both sides is hence-EXTREME to say the least....but, but, but ...
I could tell you a million gazillion reasons on why I am considering a mastectomy. In the end it all comes down to me being scared. Yes, I made it through Chemo well. You all say it. Everyone tells me how good I look. I don't feel good. I feel gross, ugly, sick, weak, horrible. I am scared every single day. I worry about it coming back. I am terrified of having to do chemo again...
Anyways....
Friday, July 30, 2010
"But..." no more buts!

Saturday, July 24, 2010
Chemo Nr. 6
After Nr. 5 being the way it was, I just new it was going to be tough...And it was!!
I got quite sick within the first 20 minutes of the first dose...boy! I did not have it in my this time to concentrate on anything else. I hate pitting myself...I hate feeling sick...I hate beeing stuck in a situation that causes me to feel this way.
"It is the last one", "You are almost done", "Remember it is for the better"....GREAT!
My Dr. told me today that I should pick a song or something to celebrate this achievement-sorry but celebration time will have to wait!!!
My sister and husband were there to be next to me through all of it and I am thankful for everyone that cares for and about me, but sometimes explaining how I am doing, how things are going, gets exhausting!
I got very sick and actually do not feel like writing too much about it, other than that it was, as expected, VERY tough and hard for me. I am grateful that I am done with this!
Saturday, July 17, 2010
Gentest-the result
Yes. these days happiness seems small and fragile...like something I have to handle with care!
Saturday, July 3, 2010
Chemo Nr. 5
Tuesday, June 22, 2010
Lymphdrainage
Yeah, they say that since only 2 lymphnodes were removed I should not have problems.
But I do.
A lot.
My arm hurts, it swells, and I cannot carry my purse with it.
So, I am getting lymphdrainage today!
Sunday, June 20, 2010
Babies Mamas, Mamas with strollers, pregnant women
Let's all be a bit more mindfull!
Tuesday, June 15, 2010
The Good The Bad The Ugly
When I can feel hopeful.
When I know I will beat this.
When I put a smile on my face no matter how many people turn their heads at my hairless head.
When I smell the forrest, a flower, food or something and think "how wonderful".
When I can go for a walk.
When I feel like talking.
When I enjoy reading.
When I feel inspired.
The Bad days are:
When I feel sad and worried.
When I cannot enjoy food.
When I feel tired.
When my energy is low.
When I have hot flashes.
When I smell somebody's perfume and it makes me gag.
When peoples looks hurt me.
When questions get on my nerves.
The Ugly days are:
When I have not the least bit of energy, strength, courage, or will to continue this fight.
When that silent feeling of panic cannot be controled and gets louder by the second.
When I wake up after a night of tossing and turning and am not so sure on how I am going to make it through another day of this.
When every day is only just one day closer to the next Chemo day.
When I want to scream, cry, and yell but don't even have the energy for that.
I am not one for pitty and I am not asking for it now either. The reason for me letting you know that I have bad days and worse days is simply that I am sorry for the way I act on those days.
I have been told how great it is that I am positive a million times over, but sometimes I too, am scared...fear is not a feeling I am very comfortable with, and it is in those moments of fear that I feel completely unable to come and ask for help. So please, please, please forgive me when I come across as rude!
Most days are good days for me, and I want to continue that way. I want to be that girl that smiles eventhough she has breast cancer. I want to feel inspired every single second that I go through this.
A lot of the very lovely ladies I have met at the day clinic where I get my Chemotherapy are not as fortunate as me, don't feel very well physically, lack the wonderful support that I have, feel lonely, and feel their spirits crushed. It is for those women that I put on a smile every time I walk in there, turn over to them and say "what a wonderful day, huh...today we are one day closer to being healthy!"
So, in the spirit of this, let us all have a wonderful day and let's help somebody smile and let us feel very inspired!
Monday, June 14, 2010
Chemo Nr. 4
Tuesday, June 1, 2010
Medications
Day before Chemo:
- Cortison 1 pill every six hours
Day of Chemo:
- 1 Cortison pill in the AM
- 1 Aprepitant (Emend) for (or rather against) the nausea
Chemo itself:
1x Aprepitant
1x sleepy medicine
1x coritson
1xDocetaxel (Taxotere®) 75mg/qmKO-->actual Chemo stuff....
1xDoxorubicin (Adriamycin) 50mg/qm KO-->actual Chemo stuff...
1xCyclophosphamid 500mg/qm KO-->actual Chemo stuff....
7 hours after Chemo: 1x Cortison
Day1 (after Chemo):
- Aprepitant
- leukocyte booster shot
Day 2:
- Aprepitant
Day 5-10:
- Antibiotic
Every day:
3xVitamin B-because my hands and feet go numb all the time
If my blood count is low, I have to take antiobiotics for 5 days, which it has been low almost every week!
Friday, May 28, 2010
Half way point
Crushed a bit, really.
But I will only admit it on here.
I will not tell anybody how devasting today was for me!
Here is what happened. Since I am half way done with Chemo, I had an appointment for an ultrasound to check if Chemo has shrunk the tumor. That would be good. If it was gone it would be ideal....
Well, I can still feel the tumor and told myself "it won't be smaller!".
It isn't.
Of course the Dr. tells me that since it has not grown, that is still GREAT.

Friday, May 21, 2010
Chemo Nr. 3.
Things went fine, M. sat with me the entire time, my Mom came by. I cannot eat the hospital food they serve us for lunch anymore. The smell alone is enough to make me gag. So M. went to the butcher across the street and got me some sandwiches. I am not sure wat it was, but I know that I cannot eat anything from that place anytime soon.
I am sick. I am tired. My head is spinning. I am weak. Quite weak. M. and I went "shopping" with a couple of friends. It was too much for me. In the evening we were invited to dinner. It was too much.
Now I just lay here. Feeling tired and sick, unable to sleep, unable to get comfortable. I wish the chemo monster would leave.
I have no hair left on me. A few eyelashes. I look in the mirror and do not recognize the person I see.
Thursday, May 20, 2010
FEAR
A state or condition marked by this feeling: living in fear.
A feeling of disquiet or apprehension: a fear of looking foolish.
Extreme reverence or awe, as toward a supreme power.
A reason for dread or apprehension: Being alone is my greatest fear.
I am scared. I am fearful. I cannot explain this to you, it is just that way. I wake up and I have this fear in my. And it will not leave...
Tuesday, May 18, 2010
Happy Anniversary!
Ahhh how lucky I am to have this wonderfuly amazing husband on my side. Did I mention he sits by my side while I get Chemo, all day long, he rubs my hands when I have a headache, he makes me heat packs when my bones hurt, he cooks me soup when I am cold, he rubs my head when I am scared....THANK YOU THANK YOU THANK YOU THANK YOU!
I never take him for granted. I am always thankful to have him on my side. I am always scared that I am too rude too often.
I wish I could tell him how much evreything he does means to me!
M. took me to Italy for a few days for our anniversary...and getting away from Doctors, from Chemo, from cancer, from the fear...ahh it was so good.

Friday, April 30, 2010
Chemo Nr. 2
Tuesday, April 27, 2010
Losing my hair...
Yes, I cried for a second and got upset. But, now that it has been a few days...I know I can make it through this, too!
Monday, April 12, 2010
Exact diganosis
Invasive ductale Mamma-CA right
ypT1bm ypNo (0/2sn), L0 G3 R0 (triple negative extern)

Friday, April 9, 2010
Chemo Nr. 1
Wednesday, April 7, 2010
Gentest

Why do I write about it? Well I had the test done today. Yes, I already have the stupid cancer. However, the fact that I am 27 makes me be somewhat out of the norm...hence we would like to check it.
If I am a carrier-mastectomy on both sides is what I will be sugested, and it would affect my sister, mother...etc.
If I am not a carrier-no mastectomy neccessary.
Of course I worry, but I am in such a daze...it is all unreal at the moment.
We'll get the result "faster", so I will have it before Chemo is over....that way I can hear what the Docs suggest before I have surgery
Sunday, April 4, 2010
We are parents!
Surgery take one!
Happy Easter to everyone~H.Thursday, April 1, 2010
No metastasis
Wednesday, March 24, 2010
Chemo Port
Some of you may not know what the port is, so here a (very) brief explanation.

"A chemo port is a thin, soft, plastic tube surgically implanted into a vein in your chest or arm. It allows healthcare professionals to draw blood and deliver chemotherapy drugs directly into a vein without having to insert an IV needle each time. The chemo port produces a small bump under your skin".
The procedure of putting the port in is supposed to be quite short, 30 minutes, with only a local anaesthetic. The surgen opens the skin on your shoulder, sews the port to your breast muscle (in my case on the left side) and enters the tube into the vein, which is right there...
This is if the vein is there. In my case the procedure took 3 hours, 3 hours that I was quite awake, hearing the cuts and feeling the pulling and pushing. After 2.5 hours the head Doctor had to come to find my............I was told that I don't have enough fat on me, which makes finding the vein quite difficult.
I now have a port in my cephalica through venae sectio-in case somebody wanted to know the medical term!
Well, after 3 hours I was ready to go. Now everything went well, but don't be mistaken for one second to think that I was feeling well. The port is a foreign object in your body, and my body started revolting...it felt as though I had a belt strapped around my chest and somebody was pulling as hard as they can.
In the end however, all worked out.
Now I am all ready to get my Chemo....
Monday, March 22, 2010
I have a small heart!
Saturday, March 20, 2010
Telling people
Sooner or later I may tell, for now I don't want questions. I don't want to answer the dreaded question of "how are you?"
"Well, how would you feel if you were told you had cancer? Great! I am doing wonderful!"
I know, I know! People try to do the right thing. People don't know...sorry, but right now I just don't feel like caring about others! Thanks
Friday, March 19, 2010
IVF and bone scintigraph

Wednesday, March 17, 2010
Treatment plan
No free time today!
First we met with Dr. G. to discuss what the tumor board has decided as to what the optimal treatment would be. She explained me that they feel that I should get "neoadjuvant" chemotherapy-meaning before the tumor is removed. Dr. G. explained that resaearch has shown that doing it that way has better results in young women. After chemo, I should have surgery to remove the tumor, and after that radiation. One thing that is different if you have neoadjuvant chemotherapy is that the Doctors want to remove (a) lymphnode(s) before you begin treatment because else there is no way of telling if there are any cancer cells in the lymphnodes.
So the course of action is a little bit more planned now:
1. check for metastasis in lung, liver, and bones
2. surgery for lymphnode(s) removal
3. chemo
4. surgery tumor tissue removal
5. radiation
6. remission
After meeting with Dr. G. I went to the Oncology department and met with Dr. R. She explained me how Chemo will be, what will happen, my hair falling out, "here a prescription for a wig"....yes it was too much. Way too much! I am not sure why, but losing my hair is really bothering me. A lot.
After that appointment we had time for a quick lunch, which I don't remember too much off, except being upset.
Afterwards we had an appointment with the Children Wish Clinic.
There are 4 different options of preserving the option of having children in the future, should the Chemo destroy my ovaries:
-a shot to put me into menopause BEFORE chemo starts, it is the cheapest option-insurance pays it in full-but one that bares certain risks
-IVF-very often used, insurance will NOT pay, since I am not fertile (yet anyways), and we are looking at a cost of about €5000
-removal and freezing of ovarian tissue, which can later be implanted-not very much experience with this method yet, worldwide there are 8 children that were born through this method.
Too many choices and options really. And too much money. I am confused-what's new.
After that appointment I still had to go to get an ultrsound of my liver done-no metastasis. Good news at last!
I am tired and exhausted. I know this is only the beginning but it is too much.
Thursday, March 11, 2010
Breast Center
Dr. G. will be my Doctor for now. She seems quite nice and thorough. She said that they still need one letter from the pathologist before they can give me definite recommendation for treatment, but that Chemo, surgery, and radiation are most certainly in my future-at least from their stand point.
Also, she explained that if I will get chemo, this will cause me to be in meno pause and can damage the ovaries permanently-so I need to meet with the Children-Wish-Clinic which at least is in the same building.
After meeting with her my Mom went to work and I had a bit time before going to the next hospital to get an MRI done. I have had one MRI before and it was no problem, uncomfortable but doable. Not this time. No no no! About 10 minutes into the deal I could not handle it anymore and rang the bell and told the ladies to get me out of there...so we will have to do it again sometime! Great!
Wednesday, March 10, 2010
Last night...
...I had this nightmare that I had breast cancer. Then I woke up this morning and realized that it was reality!
M. is scared. I see it when I look into his eyes. I try to comfort him but just can't find the right words. He has asked his Mother to come so that he can have some support. He realized that his job is being there for me now, and that I cannot give him much...I am glad she is coming.
I am confused!

~H.
Second opinion

~H.



